Welcome to your new educational site, spreading awareness about Sickle Cell Disease!
Talking about our daughter’s illness helped me cope while caring for her. I believe in sharing as a form of therapy.
I’m now making this a THING. Join me every Thursday or Friday nights giving support / comfort to people affected by Sickle Cell Disease.
_Let’s make SCD Famous!
About the Presenter:
Register here to be on the show!
Agnes is a mother of four children. Her dedication to advocate for Sickle Cell Disease (SCD) started over 10 years ago when her youngest daughter was born with Sickle Cell Anaemia. A Data Analyst by profession, Agnes, became a Registered Nurse to understand SCD and what her daughter was going through. She studied for a master’s degree in Nursing from the University of Sydney in Sydney NSW Australia before studying for a bachelor’s degree in business and a diploma in accounting previously. With her husband Preston, they founded Australian Sickle Cell Advocacy Inc (ASCA), a not for profit organization supporting people living with SCD in Australia. Today they continue to raise awareness about SCD, provide educational support and comfort people affected by the disease. They also lobby policy makers to provide better services for people affected by SCD in Australia. To ensure people affected by SCD and other stakeholders have a platform to discuss SCD related topics or SCD life stories, Agnes has created this Facebook Live event “SCD Talks with Agnes” to showcase every Thursday or Friday nights on this Facebook page.