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Amplify Sickle Cell Voices

Webinar Series Part Two Running Thru October 2021 

Amplify Sickle Cell Voices International Inc is a not profit organisation fully registered with the aim of giving a voice to sickle cell warriors, caregivers and healthcare providers to change the sickle cell diseases narratives. Through panel discussions on social media and face to face, we intend to make it normal for anyone affected by sickle cell disease to be open and have those difficulty discussions. Created by Agnes Nsofwa the Founder and Executive Director for Australia Sickle Cell Advocacy Inc, she has seen the best outcomes for people sharing stories through The Sickle Cell Talks With Agnes platform. Sharing stories is one thing but sourcing outcomes from these discussions is another thing. The discussions on this platform are not just discussions, we intend to find solutions and create change.

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_Your Voice Matters!

About Amplify Sickle Cell Voices Part Two:

Amplify SCD Voices Series Part Two run from April 2021 to October 2021. Part three will commence in 2022. Watch this space and contact us to be part of this movement.

2021 sessions were be hosted by different Project Managers in their respective countries virtually and others willing to participate. We travelled to different countries virtually to know more about the sickle cell issues in those respective countries

There were a lot of interactive sessions with participants put into different break out rooms to brainstorm different topics. The sessions this year were primarily focused on the patient/caregiver perspective, and it was ENCOURAGED for participants to invite healthcare professionals and policy-makers to attend.

For this session, we had one pediatric Hematologist and adult Hematologist as regular contributors and other healthcare professionals were invited to be on the expert panel as needed.